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| Uplifting card found in the lift of my doctor's surgery, part of Jim's Smile Project |
I have got a referral now to The Pain Clinic, possibility for an injection into my spine to alleviate the extreme discomfort, but still no definitive answers - or even really theories - as to why my legs have suddenly stopped working as they should.
Afterwards, I had an email from my GP asking me to book a non-urgent appointment with her, but when Rachel and I went to the surgery later in the week, the earliest face-to-face appointment wasn't until mid-October!
So, we settled for a telephone interview in the middle of September instead. I'll be honest, I have little faith in telephone appointments, especially when relating to a physical condition... but if that's the best we can get, then I'll take it.
It still annoys me that she sees this as a "non-urgent" case, when I've lost the correct use of my legs!
We were actually at the surgery for my regular INR (blood thickness) test, but - thankfully - that was still within its target range and I don't need to go back until late November. If it's been out of range then I'd have had to come back weekly until it settled down again and I dreaded the prospect of repeating the fandango of getting me - and a walking frame - in and out of the car and into and out of the surgery more than we had to.
Beside my blood behaving itself, the best part of the visit was finding one of James Moy's positive messages on a card in the lift from the ground floor up to the surgery (see above). This is part of his nationwide Jim's Smile Project to bring a bit of light into our gloomy world. It couldn't have come at a better time: I certainly needed it this week.
Another thing we did this week was buy me a second walking frame - this one with wheels and a basket on. I'm still getting used to it, but it's certainly added some speed to my getting around.
Notification that my Pain Clinic referral is under review came in the post yesterday, with the depressing information that their decision could take until late October. Hopefully, though, it won't take that long.
So, I suppose, progress is being made... slowly.
But the depression and frustration of not being able to do simple tasks (like picking objects up and moving them around, having a shower etc) is increasing as I realise how much I took my legs for granted in the 'good old days'. And all this comes with great pain and discomfort that interferes with my attempts to divert myself from my new disability, so reading, writing, and even watching TV can become a chore at times.
I'd just like a medical professional to tell me what is causing this instability and what can be done to correct it.
As my best mate Paul pointed out when I was talking to him about all this nonsense, if they don't know what's causing the problem how do they know the injection will help?
I guess I was too excited about anything being done to ameliorate my condition that I forgot to ask.
My bad!











































